Simple vocal tics -> more complex
Question:
In article <20000824235106.05157.00000…@ng-ba1.aol.com>, tessy…@aol.com (TESSYLOU) wrote: > I have been reading about some amazing things today. And I am wondering. Do > most TS progress from simple vocal tics to more complex ones? > My son has gone from clearing his throat, to this weird thing he does with his > nose, and recently to a high pitched sigh (almost). > TIA > Tessylou
Hi Tessylou, My son started out with complex vocal tics and developed more simple ones later on. I think you’ll be amazed at the "variety" of tics your son will have- just as we are! Each is unique in it’s own. Take Care…..Laura Sent via Deja.com http://www.deja.com/ Before you buy.
Response:
TESSYLOU <tessy…@aol.com> wrote in message
news:20000824235106.05157.00000025@ng-ba1.aol.com… > I have been reading about some amazing things today. And I am wondering. Do > most TS progress from simple vocal tics to more complex ones? > My son has gone from clearing his throat, to this weird thing he does with his > nose, and recently to a high pitched sigh (almost). > TIA > Tessylou
Not necessarily, Tessylou. What does generally happen, however, is the whatever one does do, it will pass, turn into something else, diminish in intensity, increase temporarily, or disappear altogether. So, wait a while and this too shall probably pass. sigh…. As if that were much help to you. KAT in CT
Response:
He says it "feels good", which is not a response I’ve > heard from any other kid making kid noise.
Please see my post on another thread re: this ‘feels good’ comment from young children. KAT in CT
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>So, wait a while and this too shall probably pass. >sigh…. >As if that were much help to you.
Actually, that thot is what keeps me going some days ::crooked grin:: karenk
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>>So, wait a while and this too shall probably pass. >>sigh…. >>As if that were much help to you. >_______________________________ >Actually, that thot is what keeps me going some days >::crooked grin::
_______________ It does help. Mostly because it comes from people who have been there! Tess
Response:
> They just say its fun. (And they >can stop for 60 seconds). >Fortunately, so far, most of these are just considered normal… tho >sometimes >annoying…. stuff for a 6 yr old and no one comments on it. >karenk
It seems to me that I am the only one annoyed by my sons stuff. I am the one that is around for most of it, and I must say it is driving me batty(well not really batty, but it is driving me nuts) Anyone out there with some good tips on coping with things that rub you the wrong way? I love my son dearly, and I wouldn’t trade him for the world, but many of his manerisms (whether its tics, OCD, ADD?, I don’t know) are a constant rub against me. And I find myself getting frustrated at him for things that may just be who he is. How do I cope with that? How can I get past it? Tessylou
Response:
> It does help. Mostly because it comes from people who have been there! > Tess
I’m glad Tess. It does help, in any given situation, to speak with people who have first hand experience with something. Even though others might be excellent observers and have great empathy, ‘being there’ has an added dimension, if only for the recipient of the info. That’s one of the great things about this group: we have people here who have experienced almost every aspect of TS, as people with it, as parents, as clinicians, as friends, etc etc. It gives one a broader perspective of what it’s REALLY like. For each of us. KAT in CT
Response:
And I find myself getting frustrated at him for > things that may just be who he is. How do I cope with that? How can I get > past it? > Tessylou
Tess, this is a tough one. I’m not a parent of a child with TS, etc., but I do understand what you are going through from other aspects of my life. I have a sibling with multiple disorders that are far more challenging to me or my family than TS ever was. And yet, her behaviors are, in large part, a function of her disabilities. But they are very, very difficult to ‘get past.’ So, with that frame of reference, I can give you only my own best advice. From the perspective of a ‘former kid’ with TS, I can extrapolate somewhat as well, as to what might be possible for your little one to do/not do, to help Mom. First and foremost: you need to develop the kind of ‘working relationship’ with your child that will allow you to speak to each other candidly, and in ways that prevent too much ‘negative energy’ from getting in the way. This assumes that he KNOWS what his DX is, and how it affects him, and that he is aware of what he can control and what he can’t control. With that said, choose a specific behavior that bothers you the most, and tell us about it. Perhaps we can help. KAT in CT
Response:
KATHRYN A TAUBERT <KATAUB…@prodigy.net> wrote: > > It does help. Mostly because it comes from people who have been there! > > Tess > I’m glad Tess. It does help, in any given situation, to speak with people > who have first hand experience with something. Even though others might be > excellent observers and have great empathy, ‘being there’ has an added > dimension, if only for the recipient of the info. > That’s one of the great things about this group: we have people here who > have experienced almost every aspect of TS, as people with it, as parents, > as clinicians, as friends, etc etc. It gives one a broader perspective of > what it’s REALLY like. For each of us. > KAT in CT
And my perspective (and I know I’m not the only one) is as a person with TS, as the mom of a son with it, and as a friend of someone(s) with it. This is a great group of people, as I’m sure you’ve already found out. — Theresa clanm…@earthlink.net
Response:
TESSYLOU <tessy…@aol.com> wrote: > It seems to me that I am the only one annoyed by my sons stuff. I am the one > that is around for most of it, and I must say it is driving me batty(well not > really batty, but it is driving me nuts) > Anyone out there with some good tips on coping with things that rub you the > wrong way? I love my son dearly, and I wouldn’t trade him for the world, but > many of his manerisms (whether its tics, OCD, ADD?, I don’t know) are a > constant rub against me. And I find myself getting frustrated at him for > things that may just be who he is. How do I cope with that? How can I get > past it? > Tessylou
Medication for you–and I’m only partly joking. I’ve been dealing with my son and this issue all summer long. I love him so much, but I find myself almost looking at him like an unwelcome visitor sometimes. I always have to bring myself up short when I do that, and try not to take my frustration out on him. That’s difficult when he’s the *source* of my frustration with not only his tics, but his behaviors. The best advice I can give is to take a lot of deep breaths (too many! now you’re light-headed!), try not to think about tomorrow, and just take it a day at a time. And take advantage of every opportunity to take a breather in a quiet place. Even so, I totally understand your craziness. I’m there, too. And come here when you need to vent. — Theresa clanm…@earthlink.net
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No great words of wisdom here…although Theresa’s mention of meds for you might help. Just a warning (if I can call it that….) My hubby gets really irritated by my son’s behaviours….and that reaction has resulted in my son spiralling upward to get that reaction….to the point where hubby is about ready to (1) kill the kid or (2) have a heart attack himself. I think my son almost has an addiction to the adrenaline produced in the conflict. On the other hand, I have trained myself either NOT to react at all, or to react in a very calm, quiet manner. And I don’t usually get the spiralling. How many of my son’s behaviours are neurologically driven, and how many are learned behaviours, I do not know. However, our very different ways of dealing with his problems, and the very different results we get, seem to indicate something to me. By the way, my son is 17, with TS+, I have TS, and I take Prozac. <g> Joyce "TESSYLOU" <tessy…@aol.com> wrote in message >Anyone out there with some
good tips on coping with things that rub you the – Hide quoted text — Show quoted text -> wrong way? I love my son dearly, and I wouldn’t trade him for the world, but > many of his manerisms (whether its tics, OCD, ADD?, I don’t know) are a > constant rub against me. And I find myself getting frustrated at him for > things that may just be who he is. How do I cope with that? How can I get > past it? > Tessylou
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I can get through anything with enough Xanax. I can get through anything with enough Xanax. I can get through anything with enough Xanax. I can get through anything with enough Xanax. I can get through anything with enough Xanax. 
)) Theresa joyce <j…@bcinternet.net> wrote: > No great words of wisdom here…although Theresa’s mention of meds for you > might help. Just a warning (if I can call it that….) My hubby gets > really irritated by my son’s behaviours….and that reaction has resulted in > my son spiralling upward to get that reaction….to the point where hubby is > about ready to (1) kill the kid or (2) have a heart attack himself. I think > my son almost has an addiction to the adrenaline produced in the conflict. > On the other hand, I have trained myself either NOT to react at all, or to > react in a very calm, quiet manner. And I don’t usually get the spiralling. > How many of my son’s behaviours are neurologically driven, and how many are > learned behaviours, I do not know. However, our very different ways of > dealing with his problems, and the very different results we get, seem to > indicate something to me. By the way, my son is 17, with TS+, I have TS, > and I take Prozac. <g> Joyce
– Theresa clanm…@earthlink.net
Response:
>With that said, choose a specific behavior that bothers you the most, and >tell us about it. Perhaps we can help. >KAT in CT
If I had answered this the day I wrote it it would have been something totally different. It seems to change I guess. The tics are probably not my biggest problem. A much bigger problem is deciding what is a tic, what is not, and figuring all that out without upsetting him or making a big deal about it all. He likes to do things (which I know most any boy does) that annoy me. Like yesterday, during a meeting I look at him and he is sticking his tongue between his fingers. I promtly nudged him and he looks up at me sheepishly and sticks it his mouth. So now I am keeping a sideways eye on him. He starts playing with his tongue on the inside of his mouth. And within a minute or so he puts both hands over his mouth, and I am certain his tongue is probably out of his mouth. Now is that a tic? Is it an obsession? Is it just his boyish nature? If I ask him (that one I did not ask), he might say I cant help it….but that can mean 2 things #1 its a tic and he cant help it #2 wanted to do it didn’t stop himself. So I might let it go–or dig deeper. But to dig deeper is a very emotional thing for him. Today as we were talking he gets so upset, I wonder if it is better not to talk about it at all…..but then I am leaving him to work it out on his own, and that is not right either. >This assumes that he KNOWS what his DX is, and how it affects him, and that >he is aware of what he can control and what he can’t control.
He knows what his DX is (as much as we could explain it and not upset him too much.) But I am not sure he understands what he can control and he cant. Some things I am so sure it is boyhood stuff, but he thinks something is wrong with him. Like having a thought to pick a scab. Kids just DO that! I did it. My husband still does it (yuck) and my son wants to pick his, and thinks theres something wrong with him cause he thinks about it, and cant(wont?) stop himself. Any thoughts? Any suggestions? Wisdom! Thats what I need! Thanks all. God Bless. Tessylou
Response:
I have been reading about some amazing things today. And I am wondering. Do most TS progress from simple vocal tics to more complex ones? My son has gone from clearing his throat, to this weird thing he does with his nose, and recently to a high pitched sigh (almost). TIA Tessylou
Response:
> Do >most TS progress from simple vocal tics to more complex ones?
We’re too new to say really, but my son’s first vocal tic was a squeek (like a guinea pig). THen a swallow sound (thank god that didnt last long) This summer he started with a FREQUENT coff. Now he hum/sings… and I’m starting to "think" his need to make crashing noises no matter where we are (or when) is a tic also. He says it "feels good", which is not a response I’ve heard from any other kid making kid noise. They just say its fun. (And they can stop for 60 seconds). Fortunately, so far, most of these are just considered normal… tho sometimes annoying…. stuff for a 6 yr old and no one comments on it. karenk
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But it can just as easily go back to throat clearing, or even sniffing–or nothing. TESSYLOU <tessy…@aol.com> wrote: > I have been reading about some amazing things today. And I am wondering. Do > most TS progress from simple vocal tics to more complex ones? > My son has gone from clearing his throat, to this weird thing he does with his > nose, and recently to a high pitched sigh (almost). > TIA > Tessylou
– Theresa clanm…@earthlink.net
Response:
I am not an expert on this as my dau. was just diagnosed in Feb. She had other tics earlier on, but we were told they were bad habits. This involved an eeeee sound while she wiggled her fingers in front of her face. It was very irritating. Then she began a vocal tic that sounded much like a very, very loud hiccup, every 3 seconds, every waking moment of the day for about a month. I thought my husband and I would come unglued with this. But it went away and then she developed motor tics and more vocal tics, like throat clearing and then finally she developed coproralia (cursing tic). Now she seldom does the cursing tic, but does an almost constant low hum that sounds like it could come from the crypt. However, her ticcing has improved about 80% with medication. I personally think that these tics as you may know wax and wane and change back and forth into different tics, like my daughter does, but I have no real knowledge about this. Dawnee In article <20000825001845.05734.00000…@ng-ca1.aol.com>, karenk1…@aol.com (KarenK1010) wrote: – Hide quoted text — Show quoted text -> > Do > >most TS progress from simple vocal tics to more complex ones? > We’re too new to say really, but my son’s first vocal tic was a squeek (like a > guinea pig). THen a swallow sound (thank god that didnt last long) > This summer he started with a FREQUENT coff. Now he hum/sings… and I’m > starting to "think" his need to make crashing noises no matter where we are > (or when) is a tic also. He says it "feels good", which is not a response I’ve > heard from any other kid making kid noise. They just say its fun. (And they > can stop for 60 seconds). > Fortunately, so far, most of these are just considered normal… tho sometimes > annoying…. stuff for a 6 yr old and no one comments on it. > karenk
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