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Question:

so i think i’m on my own with all that’s happened…and now it seems like theres a name for it… through school life i was that mad kid with the tix…i’ve gone on to be bigger and better than the lot of them but i know i still ain’t right…i don’t know what the next steps are though… anyone….

Response:

In article <8umh39$a1…@gxsn.com>,   "Tony Rea" <t…@freenetname.co.uk> wrote: > so i think i’m on my own with all that’s happened…and now it seems like > theres a name for it… > through school life i was that mad kid with the tix…i’ve gone on to be > bigger and better than the lot of them but i know i still ain’t right…i > don’t know what the next steps are though… > anyone….

Hi Tony! Welcome to this forum.  From your e-mail address I’m assuming you’re in the UK. You would be very welcome to join us – in the discussion forum, chat room (times on home page) or you could contact others in the guestbook. You’re certainly not alone – there’s plenty of us here! Take care – and glad you found us Cas tosy.co.uk http://www.tourettesyndrome.co.uk Sent via Deja.com http://www.deja.com/ Before you buy.

Response:

Tony Rea at t…@freenetname.co.uk wrote on 12.11.00 10:43 AM: > so i think i’m on my own with all that’s happened…and now it seems like > theres a name for it… > through school life i was that mad kid with the tix…i’ve gone on to be > bigger and better than the lot of them but i know i still ain’t right…i > don’t know what the next steps are though… > anyone….

You’ve made a great step in coming here. Welcome Tony! I’m 45 and I didn’t find out I had TS until I was 38. First of all, you are ok, you are just different. You have a neurological condition. Most people don’t have it, but a lot of people do. And there are a lot of us here on AST. The next step is to get some good information about TS. Ask all the questions you want to right here. Also, here are some great websites with good, up to date information about TS and about living with TS: http://www.tourettesyndrome.co.uk/ http://members.home.net/tourettenowwhat/ http://www.thecoffeechronicles.com/ You can find other links on those sites too. As far as treatment goes, many people with TS choose not to use medications. There are many unpleasant side effects with all of them, and are best left to those whose tics seriously interfere with their abilities to function and complete day to day tasks. It’s a personal choice that shouldn’t be dictated by any doctor. I happen to take meds, but a lot of people don’t. On the other hand, if dealing with TS is too difficult, or if a person has other issues, such as OCD or depression, therapy with someone who is well informed about TS is very helpful. A good source for information about that is http://www.tourettesyndrome.net/ Again, welcome to AST. You certainly aren’t alone here. Ellen

Response:

Tony Rea <t…@freenetname.co.uk> wrote in message

news:8umh39$a1i$1@gxsn.com… > so i think i’m on my own with all that’s happened…and now it seems like > theres a name for it… > through school life i was that mad kid with the tix…i’ve gone on to be > bigger and better than the lot of them but i know i still ain’t right…i > don’t know what the next steps are though… > anyone….

Tony, you have taken the first, most important step: acknowledgement, and seeking a place for answers. There are many of us here who have gone through precisely what you have (me included), and have found this group invaluable in helping us sort through all those very old questions, with answers that finally, after all those years, make sense. Write more. Tell us how you feel. Ask us what you want to ask. And welcome home. "-) KAT in CT

Response:

Ellen,   I am 39. I have been lurking here for a while. I began to suspect that I had TS a year or two ago when I spent an hour or so chatting in a TS chat room online. I had been looking for information on tics on the Net. It was a very strange feeling to chat with others who shared my oddities. As far as I know, I had never met another person with TS face-to-face. I probably have but I did not realize it. Actually, I need to correct that. My son exhibits a number of odd compulsive behaviors and a few mild tics similar to mine but much less pronounced than mine were at his age. How would I go about getting a good evaluation to determine whether I really have TS? I would feel a bit silly since my tics are much less pronounced now than when I was a teenager. The more I read the more I say "Hey, that’s me." Are there any reasons to seek a TS diagnosis (understanding, sense of community, peace of mind, are a few reasons that come to my mind.) Where would I go to get a good diagnosis?    Thanks,          Stan Thomas – Hide quoted text — Show quoted text -Ellen wrote: > Tony Rea at t…@freenetname.co.uk wrote on 12.11.00 10:43 AM: > > so i think i’m on my own with all that’s happened…and now it seems like > > theres a name for it… > > through school life i was that mad kid with the tix…i’ve gone on to be > > bigger and better than the lot of them but i know i still ain’t right…i > > don’t know what the next steps are though… > > anyone…. > You’ve made a great step in coming here. Welcome Tony! > I’m 45 and I didn’t find out I had TS until I was 38. > First of all, you are ok, you are just different. You have a neurological > condition. Most people don’t have it, but a lot of people do. And there are > a lot of us here on AST. > The next step is to get some good information about TS. Ask all the > questions you want to right here. Also, here are some great websites with > good, up to date information about TS and about living with TS: > http://www.tourettesyndrome.co.uk/ > http://members.home.net/tourettenowwhat/ > http://www.thecoffeechronicles.com/ > You can find other links on those sites too. > As far as treatment goes, many people with TS choose not to use medications. > There are many unpleasant side effects with all of them, and are best left > to those whose tics seriously interfere with their abilities to function and > complete day to day tasks. It’s a personal choice that shouldn’t be dictated > by any doctor. I happen to take meds, but a lot of people don’t. > On the other hand, if dealing with TS is too difficult, or if a person has > other issues, such as OCD or depression, therapy with someone who is well > informed about TS is very helpful. A good source for information about that > is http://www.tourettesyndrome.net/ > Again, welcome to AST. You certainly aren’t alone here. > Ellen

– ———————————————————– "Time’s fun when you’re having flies." – Kermit the frog

Response:

Tony Rea wrote: > so i think i’m on my own with all that’s happened…and now it seems like > theres a name for it… > through school life i was that mad kid with the tix…i’ve gone on to be > bigger and better than the lot of them but i know i still ain’t right…i > don’t know what the next steps are though… > anyone….

Tony, I just want to welcome you, and tell you that when I learned about OCD and TS, it was an incredible revelation to me to discover that there are many other people who go through much of the stuff I do. Don’t know what to suggest for your next steps.  Trying to figure out my own, at this point. Blurt

Response:

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