ANYONE WITH THE ANSWERS????
Question:
Hi Cheryl! I hope you get some answers from the doctors soon. I got my answer within 2 weeks of my first attack, which, I have discovered from the NG, is rare. A lot of people wait years for the definate diagnosis. So many other things have to be ruled out. Panic attacks are the worst. And I found out they are contagious! I don’t discuss mine anymore, but I got them as my MS took a turn for the worse 5 years ago. A therapist explained to me that they are inverted depression. I got help with Prozac, and a very understanding therapist. You might look into this. There is no reason to suffer when there is medical help for this torture. I wish you the best with these problems! Sylvia
Response:
Weird and wonderful info. Back in 1961 J.U. Schegel and others did some studies on urea as a way to treat/prevent bladder infections: "From the results obtained, it would appear that urea had a bacteriostatic or bactericidal effect on all organisms tested….As would be expected the higher concentrations of urea and longer exposure were more effective." Most people and practising doctors have never heard of the oral use of urea, but it’s not uncommon in medical research. Javid and many researchers have given large doses of urea by mouth as well as intraveneously. Urea has been proven to be a safe medicinal agent, even in large doses, as well as being simple and effective. Kaye demonstrated that by increasing the concentration of urea in urine, you could directly increase the urine’s ability to stop the growth of disease causing bacteria. "These experiments demonstrated that supplementation with urea markedly increased the inhibitory quality of the urine." I am **always** on preventative antibiotics which I am trying to find a way around. So I go searching in esoteric places and came up with the above. It seems that it is not the acidity of urine that determines one’s ability to ward off infection, it is the concentration of urea in the urine. ….."within the ranges of concentration commonly achieved in human urine, antibacterial activity is more a function of urea content than of organic acid concentration or ammonium concentration." Some studies have pointed to the fallacy of telling those infected to drink large quantities of water, a practice known as diuresis. "Drinking large amounts fluid dilutes the antibacterial activity of your urine which makes it harder to overcome the urinary tract infection." HUH??? When I read this I just about had a aneurysm. But it makes sense. I have never managed to rid myself of an infection by drinking copious quantities of liquid. Maybe the current medical wisdom is dead wrong, who knows? My problem is, why can’t I try urea as a preventative for bladder infections? Where can I get some urea for internal use? I would rather use this than the constant round of antibiotics. Urea is FDA approved, by the way and is known to be the BEST diuretic ever. But I wouldn’t think urea could be patented as it is a natural substance. Searching the web only comes up with fertilizer ads (g). I don’t know if I want to buy it by the ton and I’m not sure I’d want to inject agricultural grade urea ( g). Any ideas? And no, I’m not nuts! The above is information I posted once before. I found out where to get urea – from a chemical supply company. As I suspected, it is not a prescription item and UPA grade urea is available to the individual for $14.75 a pound, plus shipping. I am of course going to discuss this with my doctor and urologist before taking this stuff, but I am willing to be a guinea pig – urea is FDA approved, supposedly very safe and I can’t see it being any more harmful than the constant round of antibiotics I’m on. This last dose of Noroxin for a UTI really screwed up my system – I’m still dealing with the antibiotic induced constipation, black stools etc. I’m eating soy yogurt like crazy, but I think I may need more acidophulus/bifidus than this is supplying. I will keep people informed – I am sure that this might be a safe alternative to preventative antibiotics – though whether any doctors know of it is another question….
Response:
hi, i have written before, and still am at a loss. i have had symptoms on and off now for about 4 years, my neuro doesnt think its ms tho…he doesnt know what it is. i have suffered from sever panick attacks lately(never had them before) and my symptoms seem to be getting worse. i now have problems with my left eye, and the eye doc said it was Amblyopia (i never had that before either, and i have been wearing glasses since i was 6 ) so, the eye doc wants the neuro to check my eyes. my question is…do panick attacks come with ms? is it something in the brain?and what is the "normal " time span for getting a diagnosis? anyone with any type of suggestions and or answers please e-mail me…i also have memory problems and i seem to get lost on these boards… thank you cbeck52…@aol.com cheryl
Response:
Hi Cheryl, I had panic attacks big time before and after first diagnosed. They slowed down, but I still get them. It is one thing I don’t tell my family about as I think they think I am crazy enough already. I also have memory problems, short and long term, had to stop working. I don’t go anywhere far from home or strange as I panic and get lost, it can be very scary. It took me about 3+ years to finally force a diagnosis out of the doctors. I had 4 MRIs had to wait 9 months each for 3 and 6 months for the 4th. When I first went in to a doctor that would actually listen to me (the first was a jerk) I went armed with a journal of all my happenings, when, what etc. and information of confirmation of symptoms from the many people here on the mslist. There was a lot of common info here that the doctors really weren’t sure of. They don’t want to admit this stupid disease is still such a mystery. It is hard to argue that it is a "common" problem for people with MS when you produce letters from others here confirming it. That was what really made them fall off the decision fence for me. Stick around here and see what info you can gather, keep track of what happens, even if it seems minor like objects jumping etc. It all adds up. Take care, — Joanne Herben email: jher…@shaw.wave.ca :} Don’t get on my nerves – they’re screwed up enough already!! :} – Hide quoted text — Show quoted text -Cbeck52664 wrote: > hi, > i have written before, and still am at a loss. > i have had symptoms on and off now for about 4 years, my neuro doesnt think its > ms tho…he doesnt know what it is. > i have suffered from sever panick attacks lately(never had them before) > and my symptoms seem to be getting worse. > i now have problems with my left eye, and the eye doc said it was Amblyopia (i > never had that before either, and i have been wearing glasses since i was 6 ) > so, the eye doc wants the neuro to check my eyes. > my question is…do panick attacks come with ms? is it something in the > brain?and what is the "normal " time span for getting a diagnosis? > anyone with any type of suggestions and or answers please e-mail me…i also > have memory problems and i seem to get lost on these boards… > thank you > cbeck52…@aol.com > cheryl
